As a family we have learned a lot as we live day in and day out with Type 1 Diabetes. Once again, I will share with you all the positives of living with Diabetes...
Aloysius is a healthy little boy.
The insulin he gets everyday helps him run around and be merry like any child his age.
Aloysius is incredibly brave. He handles his finger sticks and insulin shots like a champ.
Aloysius is developing a healthy lifestyle with good eating habits and exercise as a part of his daily routine
Aloysius' brain is being extra stimulated day in and day out...mastering left and right before many kids do, learning to read double and triple digit numbers, recalling multi-step sequences to take care of his Diabetes, learning medical terminology, etc
Aloysius is learning a lot about emotions and how to appropriately deal with them since the "highs" and "lows" take him through many different mood swings.
Aloysius has pretty amazing will power. This will prove to be an asset throughout his lifetime.
Much wisdom has been gained by a lot of people because of Aloysius and Diabetes
Met many wonderful people...our Diabetes team, fellow parents of children with T1D, other munchkins with Diabetes, people at American Diabetes Association legal advocacy, etc
We continue to shy away from getting a pump or continuous glucose monitoring units for Aloysius. The thought of having something, no matter how minuscule in size, inserted into his little body for days at a time does not sit right with either one of us. We are constantly bombarded with views on how amazing all these high tech gadgets are and how great they are at managing blood sugar levels. We have read about how great they are. But, for now, we are doing a good job being little A's pancreas, so, we will keep things just the way they are.
We did however add one high tech gadget that helps us manage his Diabetes, a Telcare glucometer! Below is a testimonial I just put together for the company.
There is less stress in our life knowing exactly what our little A’s blood sugar levels are without much of a lag time (~7 seconds) thanks to Telcare’s cellular connectivity
Easy enough for our 5-year old to take his own blood sugar
Love that it can text multiple phones and automatically uploads blood glucose information to internet
Customer service at Telcare is phenomenal; everyone is helpful and friendly
At Telcare they go above and beyond working with you as far as health insurance coverage and the location of a most convenient pharmacy
Really appreciate personal web portal that helps us share information with A’s doctor’s and print out reports with tons of data that helps us manage A’s diabetes even better!
Extremely grateful for Telcare.
And Aloysius starred in a home-video that will be used at a Telcare presentation!
Aloysius continues to make us so proud each and every day!
Lastly, I will share with you how incredibly heart breaking it is, that discrimination against little ones who have Type 1 Diabetes still occurs in this day and age. We have been trying to get the La Casa after school program at our school, PS84 The Lilian Weber School of the Arts in NYC, to get trained so that little A can attend since October 2014. We are still waiting :( In addition, we just called a meeting to request extra nursing coverage at our school so that little A's diabetes can be managed where ever he may be at school. Right now he misses snack with his classmates and occasional lunch time, recess time, specials' time, choice time, etc while working around the nurse's lunch schedule. Little A is not receiving the free and appropriate education in the least restrictive environment that his peers do. He is missing out on his educational program and it is up to us to make sure we put a stop to this. Please send positive energy our way!
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